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Treatments

There is currently no cure for retinitis pigmentosa. However, a huge amount of work is being done around the world by multiple research groups to develop various treatment options for RP and other inherited retinal conditions (Research). There has been much promising progress made in the last few years.

In the vast majority of cases RP is an isolated problem and only in rare instances is it associated with other conditions (Retinitis Pigmentosa Associated with Other Diseases (Retinitis Pigmentosa Syndromes). Refsum Syndrome is one of these rare situations where RP is associated with other problems, namely hearing loss, neurological problems, heart problems, dry or flaky skin, loss of sense of smell, and oddly shaped red blood cells. Strictly adhering to a diet that excludes or is low in phytanic acid is beneficial in Refsum syndrome.


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