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Project Researcher

Proposal for research into support for working age people in the early stages of sight degeneration

The research will investigate the employment challenges and prospects faced by people of working age who are living with degenerative sight loss because of an inherited retinal dystrophy.

Research objectives
• To understand individual experiences of living with a degenerative eye condition, specifically regarding employment and to identify the barriers and challenges.
• To identify strategies and solutions to overcome the barriers and inform the development of relevant support services.

Design and budget
The research will be conducted in three main stages over a period of twelve months.

1. Quantitative research with focus groups and online surveys, to be discussed at the working group committee, for which 25 days of research have been budgeted at a cost of £350 per day, totalling £8,750.

2. Develop ideas for sustainable resources or alternatively identify current resources and map them across the challenges and barriers identified, for which five days of research have been budgeted at a cost of £350 per day, totalling £1,750.

3. Test and develop the draft resources with the participant group, for which a budget will be calculated based on the output from stage two.

The outcomes should lead to service provision which improves the quality of the interview / employment experience and offers pathways to real help, support, advice, opportunities and equality. Outcomes should be meaningful, significant and make a real and valuable difference to people’s lives.

If you are interested, please respond with a pitch document outlining relevant past work and experience and an outline of how you would undertake this project.

Should you have any queries, or wish to apply to undertake this project, please email Thomas O’Neill, Communications & PR Manager on by 28th February 2017.


Communications & PR Officer

35 hours per week
£25,000 per annum

RP Fighting Blindness is a charity dedicated to finding a treatment for retinitis pigmentosa (RP) and other related inherited retinal dystrophies (IRDs). IRDs are hereditary eye conditions which lead to deterioration of sight and ultimately blindness, and some 25,000 people in the UK are affected. The charity stimulates and funds cutting-edge medical research and provides information and support services to those affected.

We are currently recruiting a Communications & PR Officer to be based at our office in Buckingham town centre.

We are looking for a well organised, literate and confident individual with initiative to take responsibility for certain aspects of our PR, communications and marketing remits, and to be an enthusiastic team player.

This post will report to the Communications & PR Manager.

Job Description

The communications function has grown over recent years and is still in the process of further development. This is an exciting opportunity for someone with drive to make their mark and influence the way in which the charity is represented.

Key tasks include (but are not limited to):

• Production of articles and maintenance of information on our website
• Collation and editing of material for our supporter communications
• Production of press releases promoting research projects, fundraising and other events
• Searching for and recording news coverage
• Liaison with editors / journalists to secure media coverage
• Social media maintenance and management
• Production of the charity’s blog
• Overseeing production of patient information and other related materials
• Liaison with designers and printers
• Assisting with the maintenance of the website and other online presences
• Assisting with the development of fundraising campaign material
• Assisting with the production of internal publications and statutory documentation
• Production of e-newsletters and other ad-hoc bulletins
• Maintenance and protection of the charity’s brand identity
• Working with colleagues to plan and deliver events

Person Specification

Essential Experience / Knowledge

Educated to at least A Level standard
2 year + working within a commensurate role

Writing with impact across a variety of media online and offline
Good knowledge of grammar and writing protocols

Desirable Experience / Knowledge

PR, marketing or communications qualification
1 year + working within the charity and / or healthcare sector
1 year + editing the written work of others
Establishing networks with journalists and web authors
Familiarity with graphics / photo editing software
Familiarity with website content management systems
Knowledgeable about social media platforms and management

Personal Attributes

Highest standard of written English
Ability to write for different audiences
Highly computer and internet literate
Can work on own initiative and to deadlines
An eye for detail, design and layout
Empathy with disability issues

Application process

If after reading this specification you have any queries about the role please call Communications & PR Manager Thomas O’Neill on 01280 821334

To apply, please email a copy of your CV together with a covering letter explaining how you meet the requirements of the role to

Further information about RP Fighting Blindness can be found at our main website

Closing date for applications is 14th March 2017.

All applications will be acknowledged.

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