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RP Fighting Blindness Annual Conference 2017

24 June 2017

Members, patients, supporters, clinicians and researchers alike are welcome to attend the RP Fighting Blindness Conference on Saturday 24th of June 2017 to share information, research news and everything RP.

This year we have some fantastic exhibitors! Click the button below for details:

Conference 2017 Exhibitors

We’ve been listening to your feedback and have refreshed our annual conference format - we’re at a new venue and have developed a more tailored programme, while retaining our respected medical speaker sessions and the ever popular RP Question Time. We’ve simplified the catering and made available more seating during breaks.

This year the conference will be held at 1 America Square, 17 Crosswall, London EC3N 2LB. This venue is conveniently situated close to London Fenchurch Street, Tower Hill and Tower Gateway stations. You can learn more about this venue on the 1 America Square website, which is linked to at the foot of this article. Directions and location information is available also.

This one-day event is always an important part of the RPFB calendar, bringing together over a 150 people to hear from our expert speakers, learn from each other, meet the RP Fighting Blindness team, as well as socialise and catch up with old friends. The event also incorporates the charity’s formal AGM as the last session of the day.

For the first time we’re incorporating workshop sessions into the afternoon. There are five workshops you can choose from:

Genetic Management - covering the importance of genetic management and how genetic testing is performed.
Retinal Implants - Update on Artificial Vision in the NHS and beyond.
RNIB Connect - RNIB will present on its Connect community; explaining how you can connect with thousands of others in the UK and share experiences and socialise.
Benefits - this workshop will cover and provide information about some of the benefits available to visually impaired people.
Employment - this session will cover routes into work and support services available for visually impaired people.

Each of these one hour workshops will be able accommodate up to 40 people. You will be asked to select which workshop you wish to attend when you register. We'll do our very best to accommodate your first choice of workshop but in some cases this may not be possible.

Members of RP Fighting Blindness are welcome to take part at no charge together with a partner or guide. Non-members are equally welcome at a cost of £30 each, which includes refreshments all day and the buffet lunch.

For members and non-members alike, it is essential that places are booked, as seating and catering arrangements are made in advance. Please contact head office on or call on 01280 821334 to confirm the number of places required and to select the workshop you wish to attend. Non-members will be invoiced. Please advise us of any communications needs you may have, and if you have any food allergies or intolerances.

Programme for the day

09:00 Exhibition, stands and registration open

09:55 Convene and Conference Welcome
Don Grocott, RPFB Chairman

10:00 Small Molecule Therapies
Professor Michael Cheetham

10:30 Changing the Final Destination - correcting the mistakes in our genetic make up to prevent disease progression
Professor Tara Moore

10:50 Tea and coffee break
With a chance to view the stands and chat

11:30 Genetic testing in RP - an update
Professor Susie Downes

12:00 John Marshall Award RP Scientist of the Year presentation
Presented by Professor John Marshall MBE, RPFB Trustee

12:15 CEO conference address
Tina Houlihan, RPFB Chief Executive

12:30 Lunch
Lunch is provided and the stands will remain open

1:30 Inspirational speaker: Steve Bate MBE
Team GB Paralympic Cyclist

2:00 Workshop sessions
Workshop places need to be chosen in advance

3:00 Tea and coffee break
With a chance to view the stands and chat

3:30 RP Question Time
Chaired by Professor John Marshall MBE and joined by medical speakers

4:30 Chairman’s Conference address
Don Grocott, RPFB Chairman

4:40 Annual General Meeting*

5:15 Event close

*Annual General Meeting - agenda for this session can be found on the following page.

This session covers the formal business matters of the charity. Please note that though non-members are very welcome they will not be entitled to speak or vote on any resolution. Members of the charity not attending the main conference are still able to attend this session by arriving during the preceding tea break. Please collect your voting card on arrival.

Programme subject to amendments without notice.

Notice to Members of RP Fighting Blindness Annual General Meeting

The RP Fighting Blindness Annual General Meeting (AGM) will take place at 16:40 on Saturday 24th of June 2017. All full members are entitled to attend, speak and vote at the AGM which will be at 1 America Square, 17 Crosswall, London, EC3N 2LB.

This will be the fourth AGM of the Charitable Incorporated Organisation (CIO) and we look forward to welcoming members to this meeting.

Agenda for RP Fighting Blindness AGM

1. Chairman’s welcome
2. Introductions
3. Apologies
4. Approval of the minutes of the previous AGM
5. Annual Report and Accounts for 2016
(a) Introduction
(b) Questions from the floor
(c) Resolution: to adopt the Report and Accounts for 2016
6. Resolution: To appoint Davies Mayer Barnett as auditors
7. Resolution: The Reappointment of trustees.
(a) The following trustees retire by rotation and are standing for re-election:
Don Grocott
Elizabeth Graham
(b) Keith Valentine was appointed trustee by the board since the last AGM and so retires but is standing for re-election
7. Any Other Business
8. Chairman’s closing remarks

Proxy voting

Any member of the CIO may appoint another person as a proxy to exercise all or any of that member’s rights to attend, speak and vote at a general meeting of the CIO. You can appoint someone to act on your behalf by informing RP Fighting Blindness in writing. This must state your name and address, the identity of the person you wish to elect to act for you and the meeting at which you are giving them permission to vote on your behalf.

Written confirmation of proxy voting must arrive by 21st June 2017 and can be posted to:

RP Fighting Blindness
PO Box 350
MK18 1GZ

Or alternatively emailed to

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